55.2067569, -6.244755
Northern Trust Pulmonary Fibrosis Support Group
The Norther Trust Pulmonary Fibrosis Support Group was set up in 2015 by Dr. Eoin Murtagh (Respiratory Consultant and President of our support group) and Pat Gorman (Respiratory Nurse Specialist); both are based at Antrim Area Hospital and have since been joined by Dr. Paul Minnis (Respiratory Consultant). Since then the support group has grown to offer help, support and guidance to people from all over N Ireland. We work closely with the registered charity (Action for pulmonary Fibrosis); working with them to raise funds for research into finding a cure for pulmonary fibrosis.
The Northern Trust Pulmonary Fibrosis Support Group would normally meet at Fern House in Antrim Area Hospital but since the COVID-19 pandemic we have been meeting virtually every two weeks via Zoom.
The group is very proud of its achievements and fund raising activities towards research, since its set up. We have increased awareness about pulmonary fibrosis in N Ireland and take part in many awareness campaigns; we have raised over £23,000 for research, in the last two years.
We are members of the European EU-IPFF and are involved in Europe wide working groups to help patients and carers. Through Action for Pulmonary Fibrosis we form part of a network of over 70 UK wide support groups, sharing information and support. Currently members of our support group are taking part in a working group looking at a new lung health strategy for N Ireland. We are also part of the James Lind Alliance working group working with medical professional, patients and carers, looking at ways of providing a better future for PF patients and carers.
If you have someone in your family suffering from PF or are a sufferer and think that we could help you, please do not hesitate to contact us using the contact form provided.
Services
Website: www.northerntrustpfsg.com
Carers support group meetings
sufferers of pulmonary fibrosis support group meetings
information, advice, signposting on issues facing people diagnosed with pulmonary fibrosis
Opening hours
<p>Available through our website 24/7</p>
Contact Details
NICVA will not disclose any contact details further to those published by the organisation below.
Address
6A
Ballycastle
BT54 6DF
United Kingdom